Where do I start? There is so much going on. And it revolves around mom. My last post talked about mom undergoing a cisternogram,to check the flow of her cerebral spinal fluid. The test took place about two weeks ago, and it was determined by the doctors that a shunt would help mom out.
The shunt is placed in the brain to help regulate the flow and pressure of the cerebral spinal fluid. She was in the hospital for over a week recovering. Was the shunt placement a success? Yes and no. For the most part her level of confusion is somewhat better. She still cannot see out of her left eye, but on the plus side she is not hearing voices.
Mom is very weak and tired. She has done nothing but sleep since her surgery. We have her staying at our home as she now needs 24 hour supervision. I am still working and this week I had my son in law come off and watch her. That is not going to work. Mom fell ( not son in law fault) mom just kinda slid out of bed onto the floor and we were both home at the time.
Watching mom does not make my son in law comfortable so we are going to interview and hire a companion for mom from Visiting Angels. They are coming this afternoon to do an assessment of mom and we will figure out a good match for mom. The companion will be staying win mom while I am at work.
Mom is now needing assistance getting up out of bed, getting to the bathroom and just about anything else. We have all accepted that this is her new normal. It is very sudden and hard to watch. Next week we will be going back to see her cancer doctors and try to get her back to radiation for her spine.
So, this is our life. It revolves around taking care of mom and making sure she is as comfortable as possible. Truthfully, I "know" that this is the cancer taking its toll on her. But I really have a HARD time watching her slowly deteriorate. It is so sad.
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9 comments:
Visiting Angels is a companion service but do they help with her personal activities of daily living? This is going to wear you out - Maybe you could get your mom some in-home care as well as a companion.
Her personal activities are limited as she prefers to stay in bed or her recliner. We have physical therapy come g twice a week and visiting nurses twice a week. As for in home care, that may be next.
I understand. If I can help with information (I know we live in different states) I will be happy to. I help administer the in-home program for the state I live in so I kind of know the ins and outs. Just post on my FB page.
Lisa, I'm so sorry about your Mom!!
(((Lisa))) Hang in there my friend... lean on God! You're in my prayers!!
Lisa, I just want to give you a hug! I'm so sorry that you and your family (especially Mom) are going through this.
Just remember that all of us out in blog land are sending our support.
Sorry to hear all this is happening for your mom and for all of you. She needs your support more than ever and we are all here to support you. Sending strength and love your way! Mr.CBB
Thinking of you and your Mom! Sending bug hug!
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