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Is This Our New Normal?

Everyday I as that question.  "Is this our new normal today?"  This of course refers to my mom's health.  No doubt, she has been through a lot.  More than I think that I could bear.  But mom is extra special and doubly strong.

Recently, mom has been living on her own at her house.  After her stay with us for about 8 weeks due to her daily infusion that we would give to her she was ready to be on her own.  She enjoyed  3 weeks of independence. About two weeks ago,  mom woke up with a massive nose bleed that bled uncontrollably.  She drove herself to her primary doctor who could not stop the bleeding nor the high blood pressure and then sent her to a ear nose and throat specialist.  Again she drove herself.  I was on the other side of the state for work so I called my husband to take off work to at least meet her at the ENT specialist.  The ENT had to insert a inflatable balloon into her right nostril to stop the bleeding.  Mom said that was quite painful.

My husband drove mom home and she went to bed.  In fact, she pretty much stayed in bed for about 3 days.  I went over to her house the next day to take over groceries and she was just tired and wanted to sleep.  I then went back over two days later and mom was still in her same clothes, I found out later that she did not answer the door when her pastor came over.  I don't think she was eating or drinking much either.  That afternoon I took her to the ER.

They( the doctors) could not really determine what caused the nosebleeds or her constant state of lethargy.  They kept her in the hospital for 3 days.  When she came back home with us she slept most of the time.  We did make sure she was eating and drinking, but all she wanted to do was to sleep. My husband and I think mom has been experiencing small tiny seizures in her brain.  We don't know that for sure, but either do the doctors.  But when she does have a seizure, they do make her very, very tired.

We did take her to see her neurosurgeon to determine if there was water on the brain (hydrocephalus) but she did not see any increase in the fluid via mom's latest CT tests.  She recommended a lumbar puncture to measure the pressure in the cerebral spinal fluid.  If it is increased, mom will have a shunt put in to relive the pressure.

The lumbar puncture is scheduled for this Thursday.  Radiation for her spine starts today, and continues for the next two weeks.  Luckily we have been able to schedule most of these appointments on my "days off". 

Yep, we have been busy. So, is this our new normal?  Yes.  Everyday brings new challenges.  We have learned to go with the flow.  I have learned to channel my stress into other areas.  The little things that don't get done around the house don't bother me anymore. If dinner is not ready or I didn't have time to cook, we eat sandwiches..... or eggs.  Some days I just don't have the energy to worry the every day stuff.

That being said, I have been keeping track of my grocery shopping expenses for the month of April.  March groceries and eating out costs were a financial disaster.  I will update our April grocery expenses by the end of the week.  Did we do better for April?  Check back in a couple of days and see.

Now I am off to catch up on my blog reading!  Have a great day!

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Lisa Richardson said...

Unfortunately, sounds like this is the new normal for now. I think that is a good way to look at it so you won't be as disappointed when things don't unfold according to plan. Good luck with everything and don't forget to take care of yourself.

Lisa Richardson said...

Hi Lisa hope you're okay and taking care of yourself. You're Mum is an amazing woman. Thinking of you all x